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Bo is a co-founder of DISORDER: The Rare Disease Film Festival. When he and his wife found out their daughter, Tess, had a mutation in her USP7 gene, they believed she was the only one of her kind in the world. Within 24 hours of writing a blog post about Tess and sharing on social media, he discovered a team of researchers working on the USP7 gene and his daughter's disorder. At the time, Tess was only the 8th known patient in the world. Since 2015, through his podcast and blog "Stronger Every Day," Bo has helped build their patient group to more than 20 cases worldwide. Bo created Tess Is Not Alone to support the search for more patients. He and his wife started their foundation in 2017 with a mission to cure USP7-related diseases. The short documentary was a winner at the 2017 Avalonia Film Festival and the FICOCC Five Continents International Film Festival.

  • Year
    2024
  • Runtime
    8:05
  • Language
    English
  • Country
    United States
  • Director
    Bo Bigelow
  • Producer
    Daniel DeFabio, Bo Bigelow